Jameson has now been home for 10 days and things are going great. He has totally adjusted to life at home. Matty and I have gotten a hang of his feeding process, and now that Matty has been back at work for a few days, I have found the easiest ways to get it done by myself. Ania is my little helper and a great big sister. She asks to hold J all the time, and is constantly loving on him with hugs and kisses.
Jameson has already started his follow up appointments. We see his pediatrician once a week and have been back up at Stanford to have his G-Tube checked out. As the area around his tube heals there are a lot of things we need to watch for. If anything looks out of the ordinary to us, we can take a picture and email to his doctor. They look at it and decide if we need to come up or not. We met with his occupational therapist today,who will be helping J with taking a bottle, and monitoring his development. Due to his long stay in the NICU, and being premature, he is behind in some areas, but nothing he cant catch up on. Go up to Stanford again tomorrow to meet with his GI doctor and surgeon for follow up. Since J is not supposed to really go out much and be around crowds, these doctors visits are sometimes a nice way for us to get out of the house. He will start a series a flu shots in October, and then will be okay to go out more. Right now even just a common cold could land him back in the hospital so we have to be careful and take things slow.
Overall though, Jameson is doing amazing. He is gaining weight, up to 10lbs 6oz, 1 pound heavier than when he was discharged. He is taking more from a bottle now too. Not every time, but he has taken 60ml (2 oz) twice, which is 2/3 of a whole feeding. And keeping it down better too. Best of all he is still sleeping though the night!!! He is just soaking up all the love and absolutely loves being held. Makes sense after he spent so much time laying in his crib in the hospital. It is so great having our family together at home. Cant wait for you all to meet our amazing little man.
