Day 83

Jameson is doing amazing and is almost at his full feeds. He is gaining weight and is currently 9lbs. 8oz. Matty and I were able to give him a bath and do his feedings today. We have to show his doctors that we are comfortable using his G-tube as part of the discharge process. He has two tests for discharge he has to pass. They are a hearing test and a carseat test. The hearing test is pretty standard, but the carseat test is designed for babies born before 37 weeks to make sure they can tolerate the ride home from the hospital. Since we live about an hour away, he will have to do about 90 minutes in the carseat with no desaturations. Other than that we are getting closer. We haven't received the official discharge date from the doctors, but we should know by tomorrow.

This picture is after we gave him a bath!

Day 80

Jameson is doing great. Yesterday, Jameson started on food after not eating for 72+ hours  The doctors are starting slow because they need to slowly stretch his stomach out. Matty and I were able to learn how to feed him thru his new tube. It was pretty easy. We also saw a discharge checklist at his bedside. Which means the end is near! Matty and I are being taught about how to care for the G-tube, CPR, and  getting all of our appointments together. Most of his care and nutrition watching will come from his pediatrician.  We will see a Gastrointestinal surgeon every 3 months to switch out his G-tube. We also will see an occupational therapist to work on feeding from a bottle, work on muscle tone, and stretching.

We will continue to keep you informed on the discharge process and to when he can come home. Love you all and thanks for all your thoughts and prayers.